Kevin Kammerdeiner, the story of a Wounded Warrior.

Discuss whatever you want here ... movies, books, recipes, politics, beer, wine, TV ... everything except classical music.

Moderators: Lance, Corlyss_D

Post Reply
Wallingford
Posts: 4525
Joined: Tue Jul 22, 2003 3:31 pm
Location: Brush, Colorado

Re: Kevin's Back In Hospital, Please Read...

Post by Wallingford » Fri Feb 19, 2010 12:32 am

Prayers go out to you both (and Starr).
If I could tell my mom and dad
That the things we never had
Never mattered we were always ok
Getting ready for Christmas day
--Paul Simon

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Back In Hospital, Please Read...

Post by Chalkperson » Fri Feb 19, 2010 2:02 am

FRIDAY, FEBRUARY 19, 2010
Day 630 - Feb 18, 2010

I did something really hard tonight. I left Kevin at the hospital for the night and I am at the Fisher House all by myself. I discussed it with Kevin first and when he said he didn't mind, I then discussed everything with the nurses and they were all happy to work with me on the separation anxiety situation.

So at midnight, I left. I had to chuckle because I wasn't even past the nurses station (which is right outside his door) and he was already calling the nurse. I honestly have to attend to his needs and wants at least 200 times a night. I so feel for the nursing staff, lol.

We'll also see if he calls me tonight. I had to run to Wal-mart earlier this afternoon for Pop-Tarts and he called me twice while I was gone.

I guess we'll see, huh? Maybe he will surprise me!

And before I go, here is a photo of Kevin right before his surgery. He is with his WFRC (wonderful federal recovery coordinator, lol)

But now I am going to totally ditch the blog and truly go to sleep. Uninterrupted sleep. Can you imagine? I am so excited...
Last edited by Chalkperson on Mon Mar 01, 2010 11:22 pm, edited 2 times in total.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Back In Hospital, Please Read...

Post by Chalkperson » Sat Feb 20, 2010 1:33 pm

SATURDAY, FEBRUARY 20, 2010
Day 631 - Feb 19, 2010

Guess where I am? Again? Yep - the Fisher House!!

Kevin did really well last night. He did call the nurses quite often, but he never called me once. Not at all!

So when I went in and started through the day, we discussed it and he felt good enough about letting me come 'home' every night. Yes, I know there may be nights that he won't want me to or even that I won't want to if he is really sick or something, but this is a HUGE step toward building his independence.

This is really just such an exciting step too. It makes me feel so good to see him progressing like this. It just gives you such hope that he may really be closer to normal someday than we ever thought to wish for.

And man...I can't tell you how awesome it was to sleep. To just sleep. I slept hard last night and it felt so good. I am planning on it tonight too, lol.

And that's what I am going to do right now. I will leave you with a photo of Kevin fake crying as I was getting ready to leave tonight.
Last edited by Chalkperson on Mon Mar 01, 2010 11:22 pm, edited 1 time in total.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Back In Hospital, Please Read...

Post by Chalkperson » Sun Feb 21, 2010 3:09 am

SATURDAY, FEBRUARY 20, 2010
Day 632 - Feb 20, 2010

I am writing early tonight because I need to run to Walmart at midnight when I leave the hospital and get Kevin some more food.

Hallie - you just mentioned that you were concerned about how Kevin feels about himself now that half his head is gone and I have to admit I am a little worried about it too. He is adjusting kinda, but you can tell it really bothers him because he rubs it all the time and pulls the mirror out of his tray to keep looking at it. He always has such a sad look on his face every time he sees it too. It really breaks my heart.

I also asked him if he wanted to record a video for the blog tonight and he was adamant in saying "NO". He told me no way while his head looks like this. I did tell him that he would have to get used to it and that it will be better once his hair grows back in, but he's just not ready yet. It's only been a few days so I can be patient, but I will just have to keep an eye on him.

As for when the plate will be replaced, we just don't know. We do know it will be at least 3 months.

He also does not have to wear a helmet, but we were told if we want to we can go buy a skateboard helmet. Our surgeon is a little different in believing a helmet isn't necessary so I just need to decide if I want him wearing one or not. We do all have to remember that we didn't have one the last time and he was way more unsteady on his feet back then.

And to Kathy in IA - I guess all of the cultures came back negative?! They think it's because he was on the antibiotic for 5 months and that's why. We are using a broad range IV antibiotic for treatment so I guess we'll see what happens.

As for the pain - we are working on trying to manage it better, but I still wouldn't feel comfortable taking him home. What I am seeing is is that he is in a lot of pain and very dizzy every time he gets up out of bed. I am hoping this will go away pretty quick, but I worry it's a fluid issue due to the plate being out. Time will tell, I guess.

Kristen - please call me! I left your number in FL so I can't call you. Afternoons and evenings are best. I can't always answer, but you can sure try. And I love you too! And Travis!

And to my two other friends from home in PA (Diane and Mary Jo) - I hope you are enjoying visiting our home. I cried like a baby this afternoon because you arrived in FL to visit us and we are in TX. I just hate that every stinking time someone I am friends with comes to visit, Kevin gets sick. This sure is a lonely endeavor (among so many other adjectives) and I really miss all of my friends.

Oh well, it doesn't matter I guess. Just take care of that darn cat of Kevin's and eat as much as you want. I am glad that someone is there to make the house look lived in. I so wish we were there with you though. Next year you aren't buying your tickets until the day before you can come. That's what Moe learned to do, lol.

OK, enough about this. I am going to go watch Happy Gilmore with Kevin. Like we haven't seen it 300 times already, haha.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Back In Hospital, Please Read...

Post by Chalkperson » Tue Feb 23, 2010 10:24 am

TUESDAY, FEBRUARY 23, 2010
Day 634 - Feb 22, 2010

Kevin had the drain pulled out of his head this afternoon. I am so hoping that there will be no fluid build-up. I just have to keep an eye on the size of his head, I guess.

He is still in a LOT of pain when he gets up out of bed though, but that's about the only time. I really am a little worried about this as I just can't imagine him not being able to get up out of bed much for months on end, but hopefully it will get better as time goes on.

He is going to get a Picc Line over the next day or two as well because he is going to be on IV Antibiotics for quite some time. I guess we can either have a visiting nurse come and administer the meds (wherever we are) or I can learn to do it myself. Gotta give some thought to which way I want that to go, but I'm going to wait and see how hard it is.

And to Army Mom, I don't know how long we will be here (it may be many months, it may be a year even) so I am going to put Breezy's address here for you to send Kevin a letter. I will also put it in the column on the right.

Kevin Kammerdiener
3500 Oakgate Dr
Apt 1101
San Antonio, TX 78230

And to Diane and Mary Jo - I can't believe you went into the pool! The water has to be 50 degrees, lol. You guys are just nuts! Enjoy though - and have a safe trip home!

And I think Moe is on the right track - nobody should tell us when they are coming. This way we might just be there.

Ok, off to bed for me. Kevin is staying every night by himself now. He did call me a couple of nights ago at about 1:30am and I went back up to the hospital for almost 2 hours, but other than that he has been excellent. It stems from everyone in the hospital treating him like he is their best friend. All of the nurses go in and visit with him every day just for fun. He is having a blast. And I love to see him joking around with all the guys and he sure does flirt with all the ladies, lol.

It just makes my heart sing to see the strides he has made since coming here. I was so scared that we would take that plate out and he would go back to what he was in the beginning. But he is really coming a long way each and every day. At this rate I won't need to worry so much about him going to that TBI facility.

I just wish he would be medically stable forevermore...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Back In Hospital, Please Read...

Post by Chalkperson » Thu Feb 25, 2010 9:56 am

THURSDAY, FEBRUARY 25, 2010
Day 636 - Feb 24, 2010

Kevin got his Picc line today. You had to know that we had just gotten our lunch in the cafeteria and the admin from the burn unit came down to get us because they wanted Kevin 'right now' in Special Procedures. The poor kid wolfed down his sausage, but phew - was he mad. Nobody gets in between Kevin and his food, lol.

He did do a 'little' bit better with the pain today. I think we only gave him two IV pushes of pain meds and that's great. Matter of fact, before I got there this morning they wanted to give him one and he told them no and that he wanted the pills. Thank goodness! I told him he had to be down to zero for a few days before I would take him home. I don't want a repeat of September when I had to have him readmitted because I couldn't get a grip on his pain.

And unfortunately ENT didn't come today. I am hoping tomorrow...

And today Kevin counted to 11 without any prompting whatsoever. He has been stuck on the number 8 all this time and it finally came out today automatically. I hope it does tomorrow too and then I am hoping he will agree to a video for the blog. Wish us luck on this! He's doing well going down to the cafeteria, but then again it's a hospital. Who knows...maybe he won't care what he looks like after a while. I know we don't. It's kinda funny, isn't it? Breezy and I were just discussing how we can look at Kevin with half a head and not even notice it. It's amazing the things you get used to, it really is.

PS - does anyone have a copy of Toy Story on DVD they are willing to part with? Kevin is dying for it and I can't find it anywhere. I will gladly pay for it, please just email me. TIA!
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Back In Hospital, Please Read...

Post by Chalkperson » Sat Feb 27, 2010 2:02 am

SATURDAY, FEBRUARY 27, 2010
Day 638 - Feb 26, 2010

Unfortunately, Kevin tested positive for MRSA again. I am guessing that it took this long for it to show up from the pus they took from Kevin's head because it was from the 2/16 culture that was done. I guess I should be glad that we at least know what the bug is now, but I really just want all of this to go away.

Today was really kinda a yucky day. Kevin just hasn't been feeling well today and there was hardly any joking or even wakefulness. He just slept most of the day and it worries me some. Tonight's nurse and I discussed all of the meds he is on and we are both concerned that he is on too many now. He is taking over 50 pills a day and it's just way too much. He is just so upset when he gets a cup full of pills to take so many times throughout the day.

So I want to sit down with someone either this weekend or Monday and go over each and every one of them. Hopefully we can eliminate some of them.

We did have a horrible episode today too. Kevin coughed when he took a drink and it went down the wrong tube. Honestly - I have NEVER seen that look on his face. It was utter terror; like he thought he was going to die. He just started grabbing his head and screaming and he had tears running down his face. I was utterly petrified. The nurse came running with an IV pain push and I was never so glad to see her!

Sometimes...man, sometimes this is pure hell! Mostly we can handle this, but I just hate seeing him hurt all the time.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Back In Hospital, Please Read...

Post by Chalkperson » Sun Feb 28, 2010 3:52 am

SATURDAY, FEBRUARY 27, 2010
Day 639 - Feb 27, 2010

Today was a little bit better, but not much. I think Kevin and I are both in a funk because it really just feels like there is no end. I am trying really hard to pull us out of it, but it's not easy to keep a smile plastered on my face right now.

So my sister (Kim) arrived last night. Wonderful sister that she is, she drove my car to Texas from Florida so we wouldn't have to keep renting one. It's just so expensive and I can't see the sense when we have my car that we can leave here. Truthfully, it looks like we will be here for the better part of the next year so a car is a must.

And that's really about it. I am going to quit early because I couldn't sleep at all last night so I am really tired.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Back In Hospital, Please Read...

Post by Chalkperson » Mon Mar 01, 2010 4:41 pm

MONDAY, MARCH 1, 2010
Day 640 - Feb 28, 2010

Kevin pretty much slept all day today. He did wake up long enough for a few visitors - a group from Operation Military Embrace came to visit all of the wounded warriors and my cousin Elizabeth and her husband Jake came down from Ft. Hood today too.

Kevin really wasn't in a great mood though. I don't know if he just didn't feel well or if he was just tired. We'll see what he's like tomorrow.

My sister also flew home tonight. It was nice having her here and it gave me a chance to run some errands while she stayed with Kevin for a bit yesterday. It was definitely a whirlwind trip though. And it sure was nice of her to bring us my car. Thanks, Kim!

So a couple of you were wondering why we would need to be in TX the better part of 2010. Let's see...we need to be on IV antibiotics for 6-12 weeks. While we are on them we need to have labs done during that period to test for the MRSA, meaning we need to be here at our neurosurgeon's office. We also have to meet with our plastic surgeon because Kevin doesn't have enough skin on his head to have the plate put back in. There just isn't enough to cover it and what is there isn't all that healthy due to the burns. I have been told prematurely that there are two options for this. The first is basically a graft, but this means Kevin won't be able to grow any hair. I can't even begin to tell you how devastated this will make Kevin. Truthfully, I fear he will give up totally if this ends up being our only option. The second possibility is to have a 'balloon' type implant placed under his scalp and (don't ask me how) it gets 'blown up', stretching the skin little by little. I don't know how long for sure that this takes, but it's at least a month and the surgeon that mentioned it told us he wouldn't do it for at least 6 months after this last surgery to remove the plate.

There may be some time in between the third and the six month for us to go back to FL, but honestly - I just don't feel comfortable being there for any real length of time without him having a plate in. If something should happen, I don't know where I would take him, kwim? It's just such a scary thing to not have a neurosurgeon on hand. I had been so petrified for the month or so leading up to us coming here and I don't think I can do that again.

We also need to have some other surgeries to fix some things and we are hoping to have Botox in his hand this week. This will require some therapy after the fact and it's an awful lot of paperwork to go back and forth to different places for therapy - not to mention the expense of traveling from FL to TX all the time.

And we can't forget that we want to detox Kevin at some point and I also still want to send him to that TBI facility. That's here in Texas too.

Wow. I am only touching the tip of the iceberg here. I can't see all this happening over the next year, so some of it may end up being through 2011. Especially because I can pretty much guarantee that some unforeseen emergencies will pop up. Yep, I can pretty much guarantee it...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Back In Hospital, Please Read...

Post by Chalkperson » Mon Mar 01, 2010 8:51 pm

MONDAY, MARCH 1, 2010
Day 641 - Mar 1, 2010

I am writing very early tonight because we will be heading down to ICU for a bit. Although we are unsure at this time, we are thinking that Kevin is 'overdosed' on pain meds. He is barely responsive and he is vomiting all over the place. His CT scan looks great, so we don't feel it is a neuro situation.

I probably won't be able to update until tomorrow, but I didn't want anyone to be upset in the interim.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Hospital Updates...

Post by Chalkperson » Wed Mar 03, 2010 1:26 am

TUESDAY, MARCH 2, 2010
Update

kev is still in ICU, but he is doing much better. I will update as I can via my phone, but it will be intermittent.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Hospital Updates...

Post by Chalkperson » Wed Mar 03, 2010 1:33 pm

WEDNESDAY, MARCH 3, 2010
Day 642 - Mar 2, 2010

Kevin has been much better today, but he is still in ICU. We need him to be 'normal' for 24 hours before we will move him back up to a step down ward.

I can't begin to tell you how scared I was yesterday. We had replaced Kevin's Oxycontin with Methadone over the past week and it appears that he did get too high of a dose(or too many doses and maybe it all caught up to him). He was totally out of it. I don't think he knew who Breezy or I were at one point and he was angry and screaming at the top of his lungs. He was vomiting, we couldn't wake him most of the day, his body was having tremors and his vision was completely out of whack. I honestly thought he was dying.

My first instinct was that he was over-medicated, I even alluded to it on the blog here (I think?) previously, but the nurses all were concerned with ICP. Oddly enough, I hadn't even thought about that. Probably because he had moments of lucidity and you typically don't with ICP.

So anyway, they didn't give him his Methadone last night and when they went to this morning I asked them to wait until Pain Mgmt came in. They did end up cutting his dose by 25% so we will see what happens. I understand that we can't just pull him off completely; first because he would go through withdrawal and second because he would be in too much pain, but I just didn't think he should be given the same amount?!

I guess we'll see how tomorrow goes. I will let you all know as soon as I can.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Hospital Updates...

Post by Chalkperson » Thu Mar 04, 2010 12:40 am

Leslie posted a video of Kevin a few minutes ago, I don't know how to put it into a post so i'm posting the link...she says she is worried she broke her thumb, but, with no Insurance she can't get it looked at and says there is a bone sticking out where it shouldn't be, what an incredible person she is, my heart goes out to both of them 24/7...

http://www.lesliekamm.blogspot.com/
Sent via Twitter by @chalkperson

Ralph
Dittersdorf Specialist & CMG NY Host
Posts: 20996
Joined: Fri Mar 25, 2005 6:54 am
Location: Paradise on Earth, New York, NY

Re: Kevin's Hospital Updates...

Post by Ralph » Thu Mar 04, 2010 10:32 am

Chalkperson wrote:Leslie posted a video of Kevin a few minutes ago, I don't know how to put it into a post so i'm posting the link...she says she is worried she broke her thumb, but, with no Insurance she can't get it looked at and says there is a bone sticking out where it shouldn't be, what an incredible person she is, my heart goes out to both of them 24/7...

http://www.lesliekamm.blogspot.com/
*****

Any emergency room must treat her under federal law. There is no reason for it not be treated and not doing so may make matters much worse.
Image

"Only two things are infinite, the universe and human stupidity, and I'm not sure about the former."

Albert Einstein

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Hospital Updates...

Post by Chalkperson » Fri Mar 05, 2010 3:05 am

Ralph wrote:
Chalkperson wrote:Leslie posted a video of Kevin a few minutes ago, I don't know how to put it into a post so i'm posting the link...she says she is worried she broke her thumb, but, with no Insurance she can't get it looked at and says there is a bone sticking out where it shouldn't be, what an incredible person she is, my heart goes out to both of them 24/7...

http://www.lesliekamm.blogspot.com/
*****

Any emergency room must treat her under federal law. There is no reason for it not be treated and not doing so may make matters much worse.
Thanks, Ralph, I'll pass that on to Lesley, I was so much looking forward to meeting them this spring, but, now they are in Texas it could be up to a year before they get back to Florida...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin's Hospital Updates...

Post by Chalkperson » Fri Mar 05, 2010 3:06 am

THURSDAY, MARCH 4, 2010
Day 644 - Mar 4, 2010

We are still in the hospital. I guess things weren't lined up for us to go home so we had to stay another night. I have an appt at 9am tomorrow though to learn how to handle the Picc Line and meds. From there we will head over to the Fisher House and continue on.

I have been working on lining up a place for us to live. Now that Kevin is discharged from the Army, our only option is the FH and that really just doesn't work for someone that has Kevin's disabilities. It's a wonderful place though and soooo appreciated, but, since we will be here for quite a long time, another plan is in order.

And guess who else showed up at BAMC last night? Remember Joel and his parents Maritza and Jose? Yep! Joel flew in from FL yesterday and is here to have some graft work done. Kevin and I went and visited in Joel's room both last night and today and it's just so nice to all be together again. We haven't seen them much at all since we left the VA hospital in FL last May.

Anyway, that's about it for today. I think I am going to go and finish my newest David Baldacci book. Goodness that man can write!

Oh and to those that asked - yes, please send all mail to Breezy. I don't know how long we will be here and I know Breezy will be there for a long while yet, lol.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevinand Joel, 2 wounded warriors, new (graphic) photos..

Post by Chalkperson » Sat Mar 06, 2010 1:51 pm

SATURDAY, MARCH 6, 2010
Day 645 - Mar 5, 2010

Kevin was finally discharged today! The Picc Line instructions seem simple enough so I should be able to handle it all. We'll see tomorrow if my thumb can handle it too. So he has this little softball sized and shaped piece of plastic that has his meds inside and it is released by gravity into his arm. He carries the ball in a fanny pack (He was soooo not crazy about having to wear that, lol. Totally uncool!) and it gets changed every 24 hours or so. This means we can travel about the area and do whatever we want.

We didn't do much of anything today though. Kevin still hurts when he is up and about for too long so we are limiting what we do. We did go visit Joel for a bit and a General Thurgood came to visit the ward today. Here are some photos of the General with both Kevin and Joel. I was so excited because it's the first time I had seen Joel up out of his chair. He was fitted with a prosthetic leg and he can walk and everything now. So proud.

I would say it is just like old times, but back then none of us knew if our boys would ever wake up from their comas. Or live through the night. How far we have all come, huh? Not that we are medically stable by any means, but hopefully we are getting there and we are most definitely out of the acute stage.

And that's about it. Kevin is watching "The Jetsons" right now. He so loves his cartoons, lol.
I'm sorry if these shock anyone, they shock me, this is Kevin and Joel, Kevin's plate has been removed and Joel has one leg, can't use his arms much and is blind, but, look at their faces, see how strong and proud they are as they stand with General Thurgood, we owe these kids so much, we are lucky that Leslie chose to share her life and her son's life with us, otherwise we would never see or read this kind of stuff...It may sound corny, and i'm a Brit, but, I have to say it, "God Bless America"...
Last edited by Chalkperson on Thu Apr 08, 2010 7:35 pm, edited 1 time in total.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin and Joel, two Wounded Warriors new (graphic) Photo...

Post by Chalkperson » Mon Mar 08, 2010 8:51 pm

SUNDAY, MARCH 7, 2010
Day 647 - Mar 7, 2010

Kevin barely got out of bed today. Breezy and Chris came for dinner tonight and he wouldn't even leave the room - we ate without him.

I see him sliding backward a little bit. We were making great strides toward him handling noise and light better and we are now going the other way.

I did get him up for lunch though and while we were in the dining room he was so angry because people were talking on the phone and kids were screaming and it was just generally busy. He was screaming at everyone and you could see him 'flooding' - something I haven't really seen much of in a long time.

He also can't handle getting up out of bed hardly at all. I am hoping this is all just a fluke and that he feels better in a day or so, but we'll see.

I will say this - if this continues, this part of the journey is just going to be so rough. I just wish Kevin could handle all this stuff; noise and people. I hate that things are so hard for him.
Sent via Twitter by @chalkperson

Werner
CMG's Elder Statesman
Posts: 4223
Joined: Wed Mar 30, 2005 9:23 pm
Location: Irvington, NY

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Werner » Mon Mar 08, 2010 10:52 pm

.....................and so hard on Lesley.........
Werner Isler

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Tue Mar 09, 2010 12:33 pm

TUESDAY, MARCH 9, 2010
Day 648 - Mar 8, 2010

Kevin did a little bit better this evening. He tried to get up this afternoon, but he was really dizzy. I did talk him into trying again though by bribing him with the restaurant of his choice for dinner and it worked. He did get up (slowly) and he and I went to eat (we are back to going at 'off' times so the restaurants are not busy). He handled it well, but he was soaked with sweat by the time we got home and he was in some pain. I'm just not sure this new pain regimen is working. And I just wish I knew what the pain was stemming from too. Is it a fluid issue? Or sinus pressure? Or just general surgical pain? I just don't know.

And to change the subject - we did end up giving Princess away. My niece took her as a trial run and I haven't heard yet how it's going. Kevin was quite sad, but the cat had been home alone for weeks now and it was ripping the house apart. It really just wasn't fair to the cat and we know we won't be home for quite some time so it was the right thing to do.

And that's about it for today. I hope he feels even better tomorrow...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Wed Mar 10, 2010 10:27 am

WEDNESDAY, MARCH 10, 2010
Day 649 - Mar 9, 2010

We didn't do much today. We had to go to the hospital and have some blood drawn and that's about it. Mostly we just stayed in our room and Kevin slept while I watched tv on the computer. Luckily this time our beds are set in a "T" placement so if I am on the computer it doesn't shine any light his way.

So I am just going to sign off and go scrap for a bit. I am getting smarter by bringing some supplies when we travel now, lol.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Thu Mar 11, 2010 9:54 am

THURSDAY, MARCH 11, 2010
Day 650 - Mar 10, 2010

Today has been a pretty crappy day. Kevin is feeling somewhat better, I think because they realized he had too much of the antibiotic in his system and we stopped giving it to him. I have to take him over for a blood draw tomorrow afternoon. Once we find out his levels, we will begin again.

But I had a VERY trying day. I don't want to talk about it really, but I will say that it is very tiring and very frustrating having to fight everyone to get Kevin taken care of the way he deserves to be.

Anyway, I am not really in a very good mood so I am going to just go to bed early.

Before I go though - Janet - we did go look at the Operation Homefront Apts today and we almost ended up next door to Matt! We had to decline though because it only has a bathtub (instead of a walk-in shower) and Kevin really struggles to get into one. It was also on the second floor and I worried about "having to" do the steps. Bummer, as I was hoping to adopt Matt into the fold and make sure he was well fed, lol.

Did you all know that it's nearly impossible to find an apartment with a walk-in shower?
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Fri Mar 12, 2010 11:58 am

FRIDAY, MARCH 12, 2010
Day 651 - Mar 11, 2010

Today was another rough day. It started out ok, but we decided to go to Breezy's and have a nice dinner there. We started out and found that due to all of the construction, the roads are very bumpy. Kevin was in so much pain due to all of the bumps - just like the last time he had no plate in his head.

So it was so bad that he wouldn't even get out of the car once we got to her house. He didn't think he would be able to get up the few steps it took to reach her door. I really was at a loss as to what to do. I knew if he just lay down for a bit the pain would go away (with the help of some pain pills), but I really couldn't see how to get him up the steps. I also knew that it was rush hour and it would take over an hour to get back to the Fisher House - re-hitting all of the bumps.

We decided to just sit in front of her apartment in the car for about 45 minutes and we hoped that the pain would go away. It didn't, but it was close to 6pm by then so we left, hoping that the traffic might have died down. It was actually pretty good and we made it home in a decent amount of time.

But then we came into the house and there was a birthday party for one of the little girls that is here. First I felt bad for Kevin because I knew he couldn't handle the noise, but then I felt bad for the little girl because she had no other kids at her party.

But, Kevin's my priority so I just got him into the room and into bed. I tried to be so quiet stumbling around in the dark, but he was so overstimulated at that point that I knew it was best for me to leave the room. So I did.

I went out to the living room and had a little pity party. It really just does suck that we can't catch a break. I would say both Kevin and I have accepted what has happened to him/us, but all the other crap just needs to go away. We just want to get on with our lives and not have all these medical emergencies and not have to deal with all the red tape.

But, it is what it is, I guess. So suck it up, Les, and continue on. Right?
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Sat Mar 13, 2010 2:18 am

FRIDAY, MARCH 12, 2010
Day 652 - Mar 12, 2010

Kevin was readmitted to the hospital today. It turns out that his kidneys are not working correctly and we need to keep a close watch on him and also try to figure out what is going on.

I wish I could tell you what this really means, but at this point, I just can't. Infectious Disease is hoping it's just due to the amount of vancomyacin(sp) in his system, but we don't know for sure (especially as he's been off of it for 2 days now). Today we are running fluids through him to see if it makes a difference - I sure hope it does.

So that's really about it. I felt bad because the hospital had been calling all morning to tell me to bring him in, but I had to have my phone on silent overnight because of Kevin's over-stimulation. I never even thought about it until almost lunchtime and I looked at the phone. Duh!

But I guess it didn't make much of a difference anyway. He's here and all hooked up to the IV now so all is good. As good as can be, anyway...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Tue Mar 16, 2010 8:42 pm

MONDAY, MARCH 15, 2010
Day 655 - Mar 15, 2010

Still no word on what the plans are for the vanc. Our neurosurgeon is on vacation and the on call docs are wanting to discuss what to do with him before making any changes.

We did meet with our plastic surgeon and we did come up with a plan of action though. In about 3 months, we are going to insert the skin expanders and they will stay in for about 2 months. At that time, they are also going to fix the scar edges from the neck/chin graft, fix the one eye and Kevin also has a 'growth' of some sort on his one ear that we are going to have removed.

Once the skin has been stretched for two months or so, we will then put the plate back in. This is all assuming that there are no infections between now and then (and assuming we got rid of the one we are currently treating).

And today we went on two walks around the hospital. Both lasted over a half hour and Kevin did exceptionally well. I don't know when they are planning to release him yet, but he is at least working up to being able to move around once we do get discharged. Last week he could barely get out of bed so I am happy to see him up and around.

Maybe he can even make it over to Breezy's again (without pain)...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Thu Mar 18, 2010 10:04 am

THURSDAY, MARCH 18, 2010
Day 657 - Mar 17, 2010

Kevin was pretty grumpy today. I think he's just tired of being in the hospital, tired of being sick. His kidneys still aren't getting better like the docs had hoped they would. The doctor did remove another of his meds today - an anti-inflammatory - that they think may also be causing the problem. I guess we'll see tomorrow.

We had to change the picc line today too. The old one was giving him problems so they put one in his other arm. Not sure, but that might not be working. He seemed to be in pain in that arm a lot today, but I want to wait and see how it is tomorrow before saying anything.

I know I have not been writing much lately, but I am just so very tired. I am trying to find us a place to live and it's just not easy so it's taking up A LOT of time (and this is just me scouring the internet for one that will handle his needs). I did leave Kevin this afternoon for a bit and ran and looked at one apartment. It's so darn tiny and so darn expensive. It was really too small for him because he would be able to hear me clearly from his bedroom no matter what I was doing.

I did get a referral from one of the nurses today though and looking at the website it looks perfect. HOWEVER, there are no prices listed and that scares me. I will call tomorrow and maybe even run out there if they are open in the evening once Breezy can get here to sit with Kevin.

So keep your fingers crossed that this one works. It's looking like we will be here at least another 6-8 months consecutively. I do hope we can go home for a week or two and visit with my parents, but I'm not sure yet. I also hope we can find a decent place here and maybe (if my dad feels well) they can come for a visit too. We'll see...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Fri Mar 19, 2010 1:16 am

THURSDAY, MARCH 18, 2010
Day 658 - Mar 18, 2010

Kevin's kidneys are looking much better since they took him off the anti-inflammatory, but he is back to being in pain often times throughout the day. We will have to figure out an alternate plan for that. They also removed his Nexium and I can say - that one will have to be put back into his diet. He has been nauseous all evening and I would bet he will be vomiting by this time tomorrow.

Kev also had a CT scan yesterday and it appears that the infection is gone, at least enough to remove him from the IV antibiotic and start him on an oral one. Yay! That Vancomycin was rough!

I did take a jaunt out to that apartment complex today and 1) it's just too far away and 2) it's just way too expensive. I know I may not have a choice but to spend a small fortune on an apartment, but it's just got to be closer. If you remember, the last time we went to Breezy's, Kevin couldn't even get out of the car. That was only a 20 minute drive and this apartment was 40 minutes without traffic.

I have to admit that I am starting to really worry about where we are going to go. I have called about 150 or so apartment complexes so far and probably looked at about a thousand floor plans online - no exaggeration.

Oh well, I have a week or so to find something and get it figured out. In passing, I heard someone say that Kevin will be in the hospital at least that long.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Fri Mar 19, 2010 1:30 am

There is another Blog that I have been following, but, I don't really have the time to cut and paste, those of you who check in on Kevin could check this Blog once in a while too....
Wife of a Wounded Soldier

I am 27 years old and the wife of a severely injured soldier. I have been married to my husband, my hero, for 4 years. Throughout our 6 year relationship we were seperated over 2 years due to Operation Iraqi Freedom 1 & 5. My husband was injured by an improvised explosive device (IED) and spent 20 months rehabing at Walter Reed Army Medical Center. I am a Social Worker and Bryan now works on bomb robots. Our life has been a complete roller coaster and I decided to share with others what it is like to care for a combat wounded soldier. We are now hoping to get our life on track and start our new chapter.
http://wifeofawoundedsoldier.blogspot.com/
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Sat Mar 20, 2010 11:45 am

Day 659 - Mar 19, 2010

Kevin was pretty sick today. I am hoping it's just the Nexium loss, but we'll see. They did put him back on it tonight so tomorrow we will know for sure. He couldn't even get out of bed today at all though. He was just nauseous and drained and flat out sickly - poor kid.

Unfortunately his kidneys went backward a bit today. I'm not sure why and I didn't see the nephrologist (sp) today so I'm not sure what's going on. Maybe it was just a fluky thing so we'll see that tomorrow too.

They did start him on the other powerful oral antibiotic so I suppose it could be that.

He hasn't been eating much at all either. That right there tells you there is something wrong - that kid eats like a horse.

I asked the PA today if he thought the docs would allow me to take Kevin to look at an apartment next week (if I find one). He thought it wouldn't be a problem if a physical therapist could go with us (Oh Pam? Our favoritest therapist...?). This way I will see if Kevin is going to be able to handle the ride to the one I choose. If he can't, well we'll cross that bridge when we get to it.

And speaking of Pam, yesterday Kevin went on a 'date' with her, lol. She came in to do therapy at dinner time so the three of us went down to the cafeteria together. She made a joke about it being a date and Kevin pretended they were holding hands and acting all lovey dovey. It was so funny. She sure holds a special place in his heart - you should hear him clearly say "I love you, Pam".

And that's about it for tonight. I want to go watch some TV on the internet so I'll catch y'all tomorrow.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Sun Mar 21, 2010 12:09 am

SATURDAY, MARCH 20, 2010
Day 660 - Mar 20, 2010

Kevin's kidneys are on the downhill slant for sure. We are so going backward. He really didn't feel well today either. Breezy came and stayed with him while I went and looked at another apartment and I am not sure, but I don't think he even got out of bed. The nauseousness did go away though, so the Nexium did do the trick for that problem anyway.

It is the weekend though, so we will have to see what everyone says on Monday.

The apartment I found today will work, kinda. It is still 20 minutes away (I think anyway - gotta re-drive out there when I leave here at midnight to make sure), but the traffic isn't AS bad in that direction. It is VERY expensive - what our mortgage is in FL - but at least it fits the bill in size (almost 1400 Sq Ft) and shower needs. I made sure there are no children above us, but the tenants above do have a small dog. I have asked for a clause in the lease that if the dog makes too much noise, we can break the lease without penalty. The complex is going to get with their corporate office on Monday and see. I also need VA approval on renting here, so we will see if it works out or not.

Long-time RN - you had asked if the hospital here has a list of apartments for these types of situations and I have two things to say about this:

1) We would normally get something like this from our burn case manager. We have only seen her 1 time in the 5 or 6 weeks we have been here. I believe we are supposed to be checked on nearly every day, but that doesn't happen. If you remember - the last time we were here - she didn't help us find a place then either. Worthless, if you ask me. I just feel bad for those that have no one here to help them. What do these guys/girls do?

2) Because many of the other wounded also have her as a case manager, we have learned to help each other out. Many have given me names of some apt buildings that can accommodate Kevin, but they are all filled up. Too many wounded military personnel.

So we are basically on our own. It's ok though, I'll find something...or die trying, lol.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Mon Mar 22, 2010 8:41 am

MONDAY, MARCH 22, 2010
Day 661 - Mar 21, 2010

I am going to skip writing tonight. I am just too tired. Kevin has been pretty unbearable to deal with lately and it's quite exhausting.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Tue Mar 23, 2010 8:14 am

TUESDAY, MARCH 23, 2010
Day 662 - Mar 22, 2010

Kevin was pretty sick all day today. He never got out of bed until dinner time (7pm) and even then he went in his wheelchair to eat. He did feel well enough when he got his antibiotic at 11pm to walk down to the grab-n-go and get an ice cream, however, he didn't eat it. We just brought it back upstairs and put it into the freezer. (he has to stay in an upright position for 30 minutes after taking this medication so it's becoming a ritual to walk down every night).

I did talk to the nephrologist (sp) today and he told me that Kevin's kidneys are functioning at about 75%. They are staying right in and around that range, so they are trying to figure out what to do. They are discussing steroids, but they know that reduces the immune system and Kevin's not really in a position to handle that well. I guess we are going to discuss it again on Wednesday.

So that's about it for today. Hopefully I have something good to post tomorrow.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Wed Mar 24, 2010 9:42 am

WEDNESDAY, MARCH 24, 2010
Day 663 - Mar 23, 2010

Not really anything much to say today. They did start Kevin on some sort of iron program where he will get IV iron supplements for 5 days and that may clear up the anemia. That would be nice as it's been an ongoing problem for about a year and a half now.

So Kevin didn't get out of bed at all again today. He just is not feeling well at all.

One good thing - we got a new case manager today. Yay! She worked all afternoon on finding an apartment for us but she is struggling too. We are at the point that we are trying to find out if we can go back to FL in between all of our appointments, procedures and surgeries. It's going to mean a substantial amount of money in air travel, but it may be our only option.

I have to admit to not feeling overly comfortable being in FL without a neurosurgoen, but I can't torture Kevin in such a noisy environment. I am probably going to just have to get over it and take him home.

It won't be anytime quick though - he really isn't doing too well...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Thu Mar 25, 2010 9:06 am

THURSDAY, MARCH 25, 2010
Day 664 - Mar 24, 2010

Kevin had a better day today - most of the day anyway. We did go down to the cafeteria for lunch and he also went and did PT today.

We were given permission for him to go to the Fisher House for a few hours a day and that is when the day turned around for us. Breezy picked up dinner and I sent Kevin in to sit in the dining room while I went and parked the car. By the time I got into the house (it is very far away to the parking lot) Kevin was just overstimulated beyond belief. There is a small child in the house that isn't very well disciplined and he just screams all the time at the top of his lungs. Well, he was left to run screaming up and down the hallways and through the kitchen and it was just killing Kevin.

Now let me be the first to say that it's not that I expect everyone to be quiet just because we are around. Nobody should have to be silent and tiptoe around the house...BUT...when 21 families live together under one roof - everyone should at least be respectful to the rest of the families. You should at least consider the fact that most everyone here is wounded or ill in some way or another and people may be resting at any given time of the day or night.

But, it just doesn't matter because I will not be bringing Kevin back here. We had to pack all of our food back up and rush him back to the hospital to his room so he could shut the door and turn off all the lights for a while. I think it was a good hour before he de-stimulated (probably not a word).

It was just so sad. He was sobbing and crying while Breezy ran to get the car. His good leg was just bouncing off the floor and he started screaming and screaming in agony. It was just so heart-breaking.

He did get back to being better after a while though, but he never did eat his dinner. He really hasn't been eating much lately at all. (Yet he still gained another 5 pounds - he weighs 190 with his clothes on!!!)

And I was told today that we will not be able to go back to FL for a good year or so. I am hoping we can go in June for my niece's wedding, but we'll see. The docs are just worried that we don't have any doctors in FL and Kevin never shows advance signs of infection - never a fever, white blood count is always good - no signs at all.

So I don't have a choice but to find somewhere to live and fast. I am looking at two homes tomorrow (if Kevin feels well enough for me to go), but I am actually leaning toward an apartment that is in a definite good area of town. I am being open minded to the houses, but I was told tonight by a nurse that the area of the one is questionable. I'm still going to look though...you never know...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Fri Mar 26, 2010 9:40 am

FRIDAY, MARCH 26, 2010
Day 665 - Mar 25, 2010

I had a chat today with the PA, one of the doctors here and the new case manager and we all agreed that Kevin needs to begin TBI therapy here at the hospital when he is discharged. YAY! Cognitive therapy here we come! I am really looking forward to seeing what accomplishments come forth from Kevin having regular TBI therapies.

We also discussed that Kevin should be able to go home pretty soon, but I don't have anywhere to take him yet so he will have to stay put for a bit. His kidneys have improved about 5% bringing him up to an 80% function level. They have removed him from IV fluids and the nephrologist believes that Kevin's kidneys will get back up to 100% soon and I so hope he's right.

Kevin did feel better overall today too. He did vomit some this morning and he was nauseous a good bit of the day, but his mood was much improved. He's still not the Kevin he was before the plate was removed, but I guess I shouldn't expect him to be.

And now I am so going to bed. I only got an hour and a half of sleep last night and I am so tired that my eyes are droopy.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Sat Mar 27, 2010 12:58 pm

SATURDAY, MARCH 27, 2010
Day 666 - Mar 26, 2010

I am so happy with our new case manager. She was able to get us moved from the one Fisher House we were in to an older one that only has 8 families in it. I went and checked it out today and it was just so quiet over there. I think there are only 4 families there right now anyway and only 1 of them has children. I am led to believe the kids are older so it should be a better experience.

So at midnight I will be heading over to pack our things and get it all moved. Tomorrow night I will have to clean the room that we are currently in spotless so I may not write too much tomorrow night (or tonight really).

I am hearing that Kevin will probably be discharged early next week. I sure hope this FH works because we can't move into our apartment until April 8.

Yep - you heard me! I found an apartment! It's beautiful, in a secluded area, has an elevator, has hardwood floors for his wheelchair, has a walk in shower in the master, we are on the top floor so no noise from above and they have something in the walls guaranteeing you won't hear your neighbors on either side. It's expensive, but they all are that can fit all of Kevin's needs. I am just thankful to have found one and now I can put this stressor (I am making up words apparently this week, lol) to bed.

Gotta run - it's midnight exactly!
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Sun Mar 28, 2010 1:14 pm

SUNDAY, MARCH 28, 2010
Day 667 - Mar 27, 2010

I am not going to write too much tonight. I didn't finish packing and loading the car until 5am and then I couldn't get to sleep. I had to get up early today to bring everything over to the new FH and get it all unloaded too. Truthfully, I should finish unpacking everything, but I am just too tired.

Breezy is coming tomorrow to sit with Kevin and I am going to clean the previous room then. I also plan to cook a nice dinner - I so hope Kevin can come and eat with us.

As for Kevin, he was given an anti-nausea medication this morning and it knocked him on his butt. He slept most of the day and he was just drifting off again when I left at midnight. I only got him up long enough to shower this morning and he did take a ride over to the new FH tonight. We were only here 5 minutes though as he was in extreme pain. I honestly think it's a fluid issue and I asked the PA if it could be likened to motion sickness. We are going to discuss using a medication that is used for that and see if it works (that's if the docs ok it). Wouldn't it be wonderful if that fixed everything? Because to be blunt - I am worried sick that he can't even handle a 1/2 mile car ride and our home is like 15 miles away. If it ends up that he can't handle the ride, we will be totally 100% home-bound. He won't be able to go to the grocery store or anywhere.

Oh please...please don't let it be like that...

PS - thanks anonymous for letting me know that stressor was a word. It underlines it in the post telling me it's not and it didn't show up when I checked at an online dictionary. Strange, huh? I was so sure it was so thanks for assuring me that I wasn't cracking up (anymore than usual anyway, lol)
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Mon Mar 29, 2010 1:43 am

MONDAY, MARCH 29, 2010
Day 668 - Mar 28, 2010

I never cooked dinner and I just can't get Kevin to even try to go over to the FH. Frankly, he decided a few days ago that he is just going to stay in the hospital until the plate is put back in. He seems to understand when I say he can't be in-patient for 5 months, but he just doesn't care. This is going to be a really rough transition. I don't know if they can keep him there until the apartment is ready or not, I guess we'll see. I am really worried about all of this - more worried than I was when first taking him home.

At this point, I am just hoping that we can get him to the apartment and we'll take it from there. If he ends up being home-bound, surely I can get some help so that I can at least run for groceries. I feel confident that we can, I just really hate that we slid so far backward. He was doing so well, damnit!

In the meantime, I asked our case workers if there was a chance that Kevin could get a hospital bed for the apt. He has such extreme fluid issues that I worry about him laying flat. Now that I think about it, I believe the neurosurgeon mentioned keeping his head elevated some, so maybe they will get us one. I think I can pretty much guarantee that the VA isn't going to allow me to spend Kevin's money to buy him a bed that can elevate like that, so this is our only hope.

And I think I am going to go and just sit here for a few minutes. I am sitting outside in a rocker and if I close my eyes, I can forget the fence around the post and I won't see the checkpoint only 60 feet from my chair. I can just pretend I am sitting with Moe on the stoop at the video store, drinking a Pepsi and gabbing about how crappy (or good) our days were. Little did I know that those days can't compare to how crappy life is now...man, I would do anything to go back to those days...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Tue Mar 30, 2010 12:23 am

TUESDAY, MARCH 30, 2010
Day 669 - Mar 29, 2010

The PA gave Kevin some anti-vertigo medication today and I am so happy to say that Kevin was able to be at the FH for almost 2 hours! We only had to come back to the hospital because he really can't lay down on a flat bed and he needed to rest for a while. He had sat up nearly all that time watching one of the "Die Hard" movies, but it took 2 minutes of him laying down to create a problem. I tried so many pillow variations too, but nothing worked.

So I am battling getting sick. I feel so drained, so sick to my stomach, so woozy. I am going to end now and go to bed. At 12:04 no less!
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Wed Mar 31, 2010 8:32 am

WEDNESDAY, MARCH 31, 2010
Day 670 - Mar 30, 2010

Kevin spent the bulk of the afternoon alone today. I had to go and buy furniture if it was ever going to be delivered on time. I hate having to do this again, but when weighing the cost of packing up and moving things from FL to TX and then back again, it ends up being substantially cheaper to just buy new and just sell it when we leave.

One thing I will say is that the apartment will be on the sparse side. I am only purchasing the necessities and that's it. No curtains, no decorations, nothing. I got a couch, chair, ottoman, tv stand, tv, table and 4 chairs. I have a bed at Breezy's I can get and I will have to buy another if Kevin can't get a hospital bed. That's it for furniture and then I need to get all the normal stuff yet from Walmart - towels, plates, silverware, etc. I can't get any of that though until the day I get the keys (April 8). My car is already loaded to the gills with some of the stuff I had my sis bring when she brought the car.

So Kevin was pretty sick most of the day today and although the anti-vert worked well yesterday, he really didn't get up much again today. It's just such a bummer. He has also been in extreme pain today too. I am noticing he needs more and more to get through the day. This worries me some. I haven't seen anyone from pain management since the time Kevin was in ICU, but I am thinking it may be necessary soon. I guess I will check into it tomorrow.

And now I am going to get packed up to go home from the hospital. I gotta get up early and try to find a washer/dryer. I looked at a few used ones today and now I am going to head to the Sears Outlet. I could care less about dings/scratches/refurbished, I just need high capacity because Kevin vomits all over his bedding so frequently.

Send those 'good appliance deal' vibes my way please...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Fri Apr 02, 2010 1:37 am

THURSDAY, APRIL 1, 2010
Day 672 - Apr 1, 2010

I wish this was an April Fool's Day joke, but it's not. Kevin became very ill a few hours ago. He is running a temp of roughly 104 and it just keeps going up. They are in the process of gathering ice packs to put on him and hopefully that brings his fever down. He did get Tylenol about 2 hours ago, but that didn't help at all.

I don't know what tonight is going to entail so I wanted to write really quickly just in case. I will update as I can.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Sat Apr 03, 2010 2:55 pm

SATURDAY, APRIL 3, 2010
Day 673 - Apr 2, 2010

Kevin is doing much better - better than he has in weeks, truth be told. He got up and walked around a lot today and he didn't need any pain meds until 5pm - that in itself is miraculous! He doesn't seem to be as dizzy and he was barely nauseous today so that was pretty wonderful too. I am thinking that maybe the acupuncture combined with the two new meds he's on (one for the vertigo and one that has been found to help with PTSD) may just have done the trick. We'll see...I so hope he's just as good (or even better) tomorrow. I would really like to get him over to the FH for a bit.

And tomorrow I have to go early in the morning to get the keys to the apartment. It's times like this that I wish I had help. It's going to be really rough having to carry everything from the car up to the apartment myself. Thank goodness there's an elevator, but it's still going to be a lot of work - many, many trips over the next week. I have to go shopping every night after leaving the hospital too to buy everything we need. Have I ever told you that I absolutely HATE shopping? Kevin loves it, but I despise it. I sure wish he could do that part of it, lol.

Oh well, it's necessary and there's no sense whining about it, I guess. And I have to admit to looking forward to being in one place for a long while - I just wish it could have been where my parents are. They are discussing coming for a visit once dad feels well enough and gets through another round of chemo. It'll be a little while for sure though...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Mon Apr 05, 2010 10:20 am

MONDAY, APRIL 5, 2010
Day 675 - Apr 4, 2010

I hope everyone had a great Easter! I did end up cooking a little ham I bought for dinner and Kevin and I ate in solitude. There was no one at the FH today, which was much needed after the night we had last night.

Kevin ended up needing another PICC line inserted - even though he has a blood infection. They tried 15 times to get an IV in and to get blood. Sonar was used, even anesthesiology tried - no one can get anything. It's not due to dehydration (Kevin probably drinks more than any of us out there), it's due to medications and just over-use. His veins have probably been poked a thousand times in the last two years. So out of desperation that is what they had to do - reinsert it.

They called me back to the hospital to do this at 2:30 this morning (I was still at Walmart) and they didn't end up actually doing the procedure until until almost 3:00 this afternoon. I guess no one wanted to come in on a holiday? So I have to ask - why did I have to sit there for 12 hours waiting to sign consent forms? Yep - I have to admit that it made me mad. Honestly, I could have cared less if someone didn't want to come in until the afternoon - just don't make it where I get no sleep while waiting to sign forms because it's just so important that I come 'right now'.

Oh well, what's done is done, but this is the second night this week that I got not one wink of sleep. I am just so tired. Truthfully, I should be at Walmart finishing the shopping that I cut short last night and then unloading at the apartment. I also need to wash all the new dishes, pots & pans, silverware, etc, but frankly - I am just too dang tired to drive anywhere tonight.

So on this grumpy note - I am going to bed.
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Updates on Kevin, CMG's Wounded Warrior...

Post by Chalkperson » Wed Apr 07, 2010 12:05 pm

WEDNESDAY, APRIL 7, 2010
Day 677 - Apr 6, 2010

Kevin did better for the most part today, although we did have a bout where he was in extreme pain. We are really playing with his meds though as he is just on way too many. We are at the point now where we are just battling side effects with more meds and that doesn't really work for me (or him I would bet).

We had gotten away from needing many breakthrough pain pills over the last few days too, but we were back to it today. It got better once we gave him an allergy pill that we removed yesterday - seems like that might be a problem.

And tonight Kevin came over to the FH for a couple of hours. Not until 9pm though and only then because I didn't do laundry last night (went to apt instead) and he needed clean clothes. So we came over for a bit and watched some TV. At least I got him out of the hospital. They are discussing discharging him sometime in the middle of next week. We'll see though - he's gotta be a little more stable than he is right now first.

Before I forget - I updated our address at the side of the page. This will be our address for roughly the next year.

And to end tonight's post - today...I got my braces off! Seventeen (yes - 17!!!) months later than they were supposed to be removed. I just could never get to the orthodontist to get them tightened and stuff so I went to one here and just had him remove them. I admit that they should have gotten tightened a few more times and then removed, but what if Kevin is home-bound? I will not be able to leave the house if that's the case. Nope. I just had them taken off.

Aaahhh...what a wonderful smooth feeling...and now I won't get caught eating popcorn...or chewing gum...or eating pizza crust...or biting into an apple...or even red licorice...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin meets Joe Biden, his mom does not know who the VP is..

Post by Chalkperson » Thu Apr 08, 2010 1:12 am

THURSDAY, APRIL 8, 2010
Day 678 - Apr 7, 2010

I finally got some pictures of Kevin to show you guys. He really doesn't like anyone seeing his head anymore, but he actually agreed today. I think it was because we had a distinguished visitor at BAMC today. Here is a photo:
Screen shot 2010-04-08 at 2.07.34 AM.png
Screen shot 2010-04-08 at 2.07.34 AM.png (229.99 KiB) Viewed 5269 times
I am sure I am the only person out there in America that had no idea who the Vice President was, but I learned it today. It's actually quite sad that I didn't know, but it just goes to show how sheltered our lives are nowadays (not that I was ever a very political person). So anyway, obviously this is VP Biden and his wife. I don't know the first thing about his politics, but they were both very nice to Kevin and I and it made Kevin smile to get a visit from the VP of the good ol' USA.

And I have to admit to really liking his medical aids too. We had such a nice chat with them. I admit though, that I could never live in such a circus. So many secret service agents and just people everywhere. CRAZY!

So anyway, we also had an ophthalmology appointment today as Kevin has been trying to get me to understand that there is obviously a change in his vision. The language/understanding barrier is doing a number on us for this - I just can't get what he is saying because he doesn't understand what blurry, double vision, or any of the other possibilities mean. They did tell me he has 20/50 eyesight though and I need to find out what it was the last time he saw the eye doctor. I thought (understanding he has no peripheral vision on the right) his eyesight was 20/20. I so hope he isn't losing his sense of sight.

And now I am going to end with a couple more photos and a video of Kevin doing the 'robot' dance, lol.

Attachments
Screen shot 2010-04-08 at 2.11.40 AM.png
Screen shot 2010-04-08 at 2.11.40 AM.png (120.71 KiB) Viewed 5269 times
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin gets to meet Joe Biden...new photos...

Post by Chalkperson » Sat Apr 10, 2010 12:33 pm

SATURDAY, APRIL 10, 2010
Day 680 - Apr 9, 2010

Kevin is doing a bit better. I think it's in part because we are fixing his anti-depressants. Somehow the dosage got changed and we are working on getting it back up to to what he normally took. I attribute the reduction into causing him to be impossible to be around and into his feeling absolutely horrible. I have been so worried because I could see him sliding backward to where he was last summer/fall.

If you remember then, that was when he was running away and although I never mentioned it on the blog, he became suicidal after a while. I could see him heading back to that time and I have been a nervous wreck.

But he's doing better anyway. We still have to increase one more time and then we will be back to where we were. I am hoping the increase happens tomorrow because I know they take a while to fully work and so far he still has no desire to 'go home' to the apartment. He really wants to just stay in the hospital until the plate is put back in his head.

And today I finally made it to Pac-Sun to get the kid some new clothes. I got like 8 hours of sleep last night and hit the mall before heading back to the hospital. There is a mall just 4 miles or so from the apartment (I slept there on the couch last night - HEAVEN!). So anyway, he now has some jeans that fit better and I am proud to say that I picked more clothes that he liked than he didn't, lol.

Ok, now I need to get some bills paid and then head to bed. I already made stuffed pork chops that I am going to bake tomorrow for dinner at the FH. Hopefully I can get Kevin to come over to eat...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin gets to meet Joe Biden...new photos...

Post by Chalkperson » Mon Apr 12, 2010 9:35 am

SUNDAY, APRIL 11, 2010
Day 682 - Apr 11, 2010
There really isn't anything to write tonight. We didn't do anything today - Kevin didn't even get up to go down to lunch so it was a pretty boring day.

If I'm correct, tomorrow we are planning to take a run to the apartment with Kevin and a therapist. We just need to see if he can handle the ride and what kind of aids we need (railings, etc). Wish us luck because I really don't think he is going to be able to handle it at all. I truly hope I'm wrong...
Sent via Twitter by @chalkperson

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin gets to meet Joe Biden...new photos...

Post by Chalkperson » Tue Apr 13, 2010 8:28 am

MONDAY, APRIL 12, 2010
Day 683 - Apr 12, 2010

We didn't get to go to the apartment today because there wasn't an extra therapist to be able to go with us. It was a real bummer because Kevin was in the best mood I have seen him in in weeks. We got up and went to lunch and we sat in the waiting room with Maritza and Joel for almost a half an hour and he was just so much happier today (for the most part) than I have seen him in a long time. Maybe it's the anti-depressants? Who knows...I just hope he's like this tomorrow because we are scheduled to go at 1pm.

And yay - Kevin got his PICC line removed today! It's been giving him a lot of problems and if we would have had a choice we would have removed it days ago, but it's literally impossible to get blood any other way. So we kept it in until all his cultures came back clear. Yep - KEVIN IS INFECTION FREE!!!! (As of today anyway.)

And this is pretty much it for today. I've got to get to bed here pretty quickly because Kevin's hospital bed is being delivered first thing in the morning. Hopefully I can sleep...it really doesn't come easily...
Sent via Twitter by @chalkperson

jbuck919
Military Band Specialist
Posts: 26737
Joined: Wed Jan 28, 2004 10:15 pm
Location: Stony Creek, New York

Re: Kevin gets to meet Joe Biden...new photos...

Post by jbuck919 » Tue Apr 13, 2010 8:34 am

Chalkperson wrote:
MONDAY, APRIL 12, 2010
Day 683 - Apr 12, 2010

We didn't get to go to the apartment today because there wasn't an extra therapist to be able to go with us. It was a real bummer because Kevin was in the best mood I have seen him in in weeks. We got up and went to lunch and we sat in the waiting room with Maritza and Joel for almost a half an hour and he was just so much happier today (for the most part) than I have seen him in a long time. Maybe it's the anti-depressants? Who knows...I just hope he's like this tomorrow because we are scheduled to go at 1pm.

And yay - Kevin got his PICC line removed today! It's been giving him a lot of problems and if we would have had a choice we would have removed it days ago, but it's literally impossible to get blood any other way. So we kept it in until all his cultures came back clear. Yep - KEVIN IS INFECTION FREE!!!! (As of today anyway.)

And this is pretty much it for today. I've got to get to bed here pretty quickly because Kevin's hospital bed is being delivered first thing in the morning. Hopefully I can sleep...it really doesn't come easily...
A moving series of posts. I wonder if she knows that Biden lost his daughter and first wife. The bit about the PICC line brings back memories--when they draw blood at least once a day for five weeks and give you IVs as well the thing is actually a blessing because it permits them to do all that over a period of many days without any fresh sticks. Aside from the pain, after a while, it is easier to get blood from a turnip than from someone who has been stuck so many times.

There's nothing remarkable about it. All one has to do is hit the right keys at the right time and the instrument plays itself.
-- Johann Sebastian Bach

Chalkperson
Disposable Income Specialist
Posts: 17647
Joined: Tue Mar 27, 2007 1:19 pm
Location: New York City
Contact:

Re: Kevin gets to meet Joe Biden...new photos...

Post by Chalkperson » Tue Apr 13, 2010 10:08 am

jbuck919 wrote:A moving series of posts. I wonder if she knows that Biden lost his daughter and first wife. The bit about the PICC line brings back memories--when they draw blood at least once a day for five weeks and give you IVs as well the thing is actually a blessing because it permits them to do all that over a period of many days without any fresh sticks. Aside from the pain, after a while, it is easier to get blood from a turnip than from someone who has been stuck so many times.
I doubt she knows about Biden's wife, she has little time for Politics, in fact ,on Election night she must have been the only person in the country who did not watch it, she dedicates her entire life to Kevin, in fact, on all the soldiers blogs that I read I have never read one word about the Wars, no questioning their validity, no comment on wasted lives, nothing at all is mentioned...when my wife was Hospitalized the second time she was unconscious, already very thin from the pneumonia, they desperately tried to draw blood to make sure that she had not taken any medications, they must have tried fifty times to hit a vein, they finally did, but, her arms were black and blue from the needles, one afternoon they drew to much blood, quite a bit too much in fact, so they pushed it back into her system via the PICC line, even though she as totally full of drugs and barely conscious, she laughed and that's when I knew she was OK, as you say, PICC lines are vital...I have not posted them but Leslie uploaded more pictures of Joel, the soldier in the bed next to Kevin, he's blind, has only one leg, his arms don't work and yet he never complains, never gets irritable and accepts his newfound reality, the Army does something to these kids, it's unlike anything I have ever seen, no matter how serious their disabilities they continue on with their lives, what incredible young men...we must never forget their sacrifice...
Sent via Twitter by @chalkperson

Post Reply

Who is online

Users browsing this forum: No registered users and 11 guests